Hi Rick,
We really think what you're doing here is tremendous - thanks for sharing this with the community and letting us try to help out.
After taking a quick look at the terms you're targeting, and reading some of the suggestions here in the responses, I looked at your backlink profile - downloading the data from Open Site Explorer, you get a very quick picture of what your backlink profile looks like.
You have 149 external followed links pointing at your domain. The vast majority of the anchor text is your site's name or some form of it. Very few of the links actually point to your site using the keywords you mentioned you would like to target. That's why building an awesome page all about downs syndrome, with great information, will also help you, so that you can go out and try to acquire some links with targeted anchor text for your terms you want to rank for. I'm attaching a word cloud (created by wordle.net) which gives you a very clear picture of the relative breakdown of your backlink anchor text profile. You can barely make out the word syndrome, and it's very small compared to your brand name. Keyword rich anchor text sends strong signals to Google that your site is relevant and authoritative for the various terms you are targeting and that it should rank for what you are trying to target.
The obvious caveat is that building up your backlink profile with targeted anchor text should go hand in hand with improving the content on your site and providing great resources for people looking for info about downs syndrome, which you already said you and your wife are working on.
I wish you guys the best of luck!